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Göteborgs universitets publikationer

Patients' involvement in improving cancer care: experiences in three years of collaboration between members of patient associations and health care professionals.

Författare och institution:
Christina Carlsson (-); Mef Nilbert (-); Kerstin Nilsson (Institutionen för vårdvetenskap och hälsa)
Publicerad i:
Patient education and counseling, 61 ( 1 ) s. 65-71
Artikel, refereegranskad vetenskaplig
Sammanfattning (abstract):
OBJECTIVE: The aim of this study was to explore how members of patient associations (PACPs) and health care professionals (HCPs) experience collaboration in a network initiated by the health care system and aimed at improving cancer care. METHODS: The participants were asked to describe, after 1 and 3 years, their experiences of collaboration. Data collected were in the form of a written answer to a single, open-ended question, and the answers were analysed using inductive content analysis. RESULTS: The analysis revealed four themes: the impact of processes that occur within the network, the impact of learning, the impact of innovation and development in cancer care, and the impact of PACP members' personal cancer experience. Statements about the impact of the processes that occur within the network dominated at both occasions. CONCLUSION: This study of experiences of collaboration provides new data on the importance ascribed to such efforts between patients in an organised association and HCPs. PRACTICE IMPLICATIONS: We suggest that differences in perceptions and expectations should be taken into account in future collaborations between representatives of patient associations and of health care systems in order to reach out and to influence developments in cancer care.
Ämne (baseras på Högskoleverkets indelning av forskningsämnen):
Hälsovetenskaper ->
Hälso- och sjukvårdsorganisation, hälsopolitik och hälsoekonomi
Cooperative Behavior, Humans, Neoplasms, psychology, therapy, Patient Participation, Patient Satisfaction, Professional-Patient Relations, Sweden
Postens nummer:
Posten skapad:
2007-12-31 13:21

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