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Göteborgs universitets publikationer

Subjective experiences of epilepsy surgery in adults

Författare och institution:
Kristina Malmgren (Institutionen för neurovetenskap och fysiologi, sektionen för klinisk neurovetenskap och rehabilitering); Anneli Ozanne (Institutionen för vårdvetenskap och hälsa); S. J. Wilson (-)
Publicerad i:
Long-Term Outcomes of Epilepsy Surgery in Adults and Children, s. 209-224
Kapitel, refereegranskat
Sammanfattning (abstract):
This chapter reviews the limited literature on patients’ subjective expectations and experiences of epilepsy surgery. Patients with drug-resistant epilepsy have widespread fears and misconceptions about epilepsy surgery and often see it as a “last resort.” Their expectations of epilepsy surgery include driving, employment, greater independence, and a better social life, as well as less likely changes such as improved memory and cognition. Patients with more practical expectations have been shown to be more likely to consider surgery a success. Certain gender and racial differences have also emerged in a few studies. Adjustment to life after surgery, especially the need to discard the sick role for those who become seizure-free, has been shown to take several years. Studies of patient-perceived memory changes after temporal lobe resection (TLR) fail to show signifi cant relationships between subjective and objective postoperative memory function. Perceived sexual changes after TLR include improvement in sexuality in those seizure-free but also hypersexuality in some. Patients’ perceptions of recurrence of seizures after epilepsy surgery are dominated by psychological issues (perceived loss of self-control, reduced self-confidence, day-to-day stress, and altered expectations for the future) but are also related to the presence of seizure improvement. While the majority of patients report satisfaction after epilepsy surgery, how this should be interpreted is not entirely clear, with a focus on dissatisfaction potentially providing more information. There are as yet no published studies of patient experiences with a follow-up of more than 2 years. In one recent preliminary report with a mean follow-up of 13 years, long-term perceptions of the impact of epilepsy surgery in principle equaled the perceptions at the 2-year follow-up. Further studies of patients’ long-term experiences after epilepsy surgery are needed. © Springer International Publishing Switzerland 2015.
Ämne (baseras på Högskoleverkets indelning av forskningsämnen):
Klinisk medicin ->
Kirurgi ->
Epilepsy surgery, Long-term outcomes, Patient experiences, Qualitative study
Postens nummer:
Posten skapad:
2015-12-15 15:24
Posten ändrad:
2016-05-04 15:22

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