transparent gif


Ej inloggad.

Göteborgs universitets publikationer

Self-reported activity and functioning in daily life; the perspective of persons with haemophilia living in Sweden

Författare och institution:
Elisabeth Brodin (Institutionen för neurovetenskap och fysiologi, sektionen för klinisk neurovetenskap och rehabilitering); Fariba Baghaei (-); Katharina S Sunnerhagen (Institutionen för neurovetenskap och fysiologi, sektionen för klinisk neurovetenskap och rehabilitering)
Publicerad i:
European Journal of Haematology, 95 ( 4 ) s. 336-341
Artikel, refereegranskad vetenskaplig
Sammanfattning (abstract):
ObjectivesTo investigate the self-estimated function, activity and participation in daily life of persons with severe or moderate haemophilia A and B (PWH) living in Sweden. The secondary aim was to explore the differences between participants with early treatment onset and later. MethodsThe Haemophilia Activity List (HAL), Arthritis Impact Measurement Scales (AIMS2) and Impact on Participation and Autonomy (IPA-S) were distributed by mail to 225 PWH with an invitation to participate in the study. The median and min-max are given for the different domains; a higher value indicates more disability. ResultsEighty-four PWH (18-80years) participated. The HAL indicated more problems in the legs [40 (0-100)] than in self-care [4 (0-92)] and household tasks [3 (0-87)]. The AIMS2 scores confirmed this (physical activity 12 (0-64.5) as well as somewhat reduced autonomy outdoors [IPA-S 17.5 (0-90)]. More limitations in daily life were reported by participants with later treatment onset. ConclusionThe PWH reported greater disability in the domains related to activities using the lower extremities compared to domains related to upper extremity. This study pointed out the need of using different questionnaires to capture patients own perspective and as useful supplement to other clinical assessment instruments.
Ämne (baseras på Högskoleverkets indelning av forskningsämnen):
Klinisk medicin
haemophilia, haemophilia activity list, arthritis impact measurement scales 2, impact on participation, autonomy questionnaire, physical-activity, activities list, factor-viii, factor-ix, participation, impact, prophylaxis, abilities, arthritis, Hematology
Postens nummer:
Posten skapad:
2015-10-09 10:28

Visa i Endnote-format

Göteborgs universitet • Tel. 031-786 0000
© Göteborgs universitet 2007