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Göteborgs universitets publikationer

Sibling of children with cancer – their experience before and after participating in a support intervention combining education, learning and reflection.

Författare och institution:
Margaretha Jenholt Nolbris (Institutionen för vårdvetenskap och hälsa); Britt Hedman Ahlström (-)
Publicerad i:
PEDIATRIC BLOOD & CANCER , 59 ( 6 ) s. 994-994
Konferensbidrag, övrigt
Sammanfattning (abstract):
Purpose The objective was to evaluate an intervention that combines education, learning and reflection about cancer delivered via internet and email, regarding the provision of support and prevention of illness in siblings with a brother or sister newly diagnosed with cancer. Method A descriptive qualitative approach was used. The intervention consisted of lectures and e-mail conversations with siblings supplemented by a personal diary, designed to encourage reflections about open questions concerning thoughts and experiences of being the sibling of a child with cancer. Fourteen siblings with a brother or sister newly diagnosed with cancer participated and were interviewed before and after the intervention. A qualitative content analysis was used for the analyses. Results The analysis revealed the theme ‘to live as normal a life as possible’ comprising five subthemes; ‘sleeping problems’, ‘physical pain’, ‘emotional affections’ and ‘changes in the future for the whole family’ . Life was affected by the child with cancer. Before the intervention the siblings mostly described how new situation led, in everyday life, to suffering, fear, feelings of insecurity and doubts about the future. After the intervention the siblings were more informed about and prepared for the cancer treatments and their side-effects and the threat of death so close to them. Conclusion The siblings reflected on and dealt with difficult existential questions. The intervention helped the siblings to better understand cancer, their own reactions and their family situation. This should encourage health-care professionals to acknowledge siblings and to support them when their sister or brother has been diagnosed with cancer.
Ämne (baseras på Högskoleverkets indelning av forskningsämnen):
Ytterligare information:
SIOP conference London 2012. SIOP abstract book 2012
Postens nummer:
Posten skapad:
2013-02-01 10:39
Posten ändrad:
2016-08-25 15:26

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