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Göteborgs universitets publikationer

To get things done, the challenge in everyday life for children with spina bifida- The effects of the quality of performance on autonomy

Författare och institution:
Marie Peny-Dahlstrand (Institutionen för neurovetenskap och fysiologi, sektionen för klinisk neurovetenskap och rehabilitering); Lena Krumlinde-Sundholm (-)
Publicerad i:
2012 National Spina Bifida Conference, “Australian Masterclass” 19th and 20th October 2012 Sydney, Australia,
Konferensbidrag, refereegranskat
Sammanfattning (abstract):
Introduction: Delays and limitations in autonomy in daily life have been reported in children with spina bifida and problems often persist into adulthood. It has recently been shown that children with spina bifida often have problems in executive functioning, but no description of the specific performance skills that imply strength or weakness of task execution has been available for this group. Nor has any previous study evaluated how the quality of task performance affects autonomy. Aim: To evaluate both the quality of the performance of everyday activities and the autonomy in children with spina bifida and to investigate how the child’s autonomy relates to the quality of task performance. Methods: 50 children, aged 6-14 (of 65 from a population-based cohort in Western Sweden) with spina bifida were assessed with an observational method, the Assessment of Motor and Process Skills. Both the children and their parents rated the children’s level of autonomy with the Autonomy Scale. The relationship between the autonomy and the child’s motor and process skills was analysed. Results: The majority of the children had difficulties performing well-known everyday activities in an efficient and independent way, demonstrated by low rates of both motor and process skills. This deficient quality of task performance, in particular the process skills (i.e to initiate and to solve problems) was strongly related to the child’s level of autonomy in everyday life. The children with spina bifida had low autonomy in goal-directed situations that needed personal initiation. Conclusions: These studies demonstrates that children with spina bifida often have difficulties getting things done and problems being autonomous due to deficient quality of task performance. It is therefore crucial to understand and support the development of the performance skills, especially the process skills, in children with spina bifida in order to enhance their autonomy in everyday life.
Ämne (baseras på Högskoleverkets indelning av forskningsämnen):
Hälsovetenskaper ->
Hälso- och sjukvårdsorganisation, hälsopolitik och hälsoekonomi
Hälsovetenskaper ->
Annan samhällsvetenskap ->
Övrig annan samhällsvetenskap ->
Autonomy, Child, parent, perfromance skills, spina bifida
Ytterligare information:
Conference website:
Postens nummer:
Posten skapad:
2012-05-11 11:00
Posten ändrad:
2012-05-23 10:31

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